tag:blogger.com,1999:blog-1095252879492157665.post7812045660982972176..comments2023-09-21T06:56:30.956-04:00Comments on Call of the Creator: Fantasy Writing from a Christian Worldview: November: Memories, Loss, and HLA-B27RebeccaPMinorhttp://www.blogger.com/profile/06433599770860270767noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1095252879492157665.post-51327144012897301582014-11-17T10:22:17.555-05:002014-11-17T10:22:17.555-05:00I guess we'll see--as with all medical things,...I guess we'll see--as with all medical things, the lead time in getting the tests is long. I won't be talking to a medical doctor until early December, then they'll be ordering tests...and so on. I just need to be patient. The fact is, I won't be dropping over or debilitated in the next couple months even if I do have this particular disorder, so it's an exercise in follow through, I guess.RebeccaPMinorhttps://www.blogger.com/profile/06433599770860270767noreply@blogger.comtag:blogger.com,1999:blog-1095252879492157665.post-63329690817613420882014-11-17T10:14:07.415-05:002014-11-17T10:14:07.415-05:00Thanks for the words of support, Kat. Sorry for my...Thanks for the words of support, Kat. Sorry for my delayed response...sometimes I juggle slowly. :) I cannot even imagine going through a cancer diagnosis! Thank goodness you were persistent and got the diagnosis and care, even thought the road had no shortage of dead ends along the way.RebeccaPMinorhttps://www.blogger.com/profile/06433599770860270767noreply@blogger.comtag:blogger.com,1999:blog-1095252879492157665.post-38201680232670449042014-11-15T14:15:59.436-05:002014-11-15T14:15:59.436-05:00I can relate to that wanting to know what is going...I can relate to that wanting to know what is going on and being afraid of finding out. That's exactly what I dealt with ten years ago before my cancer diagnosis. Plagued with symptoms the docs didn't understand. Tests that kept coming back negative. Going back and back and back to tell the docs to figure this out--NOW. I was both terrified and so relieved when I finally got my diagnosis.<br /><br />Mine, of course, was curable, so therefore temporary. It has to be so much harder to deal with knowing you are facing something chronic. My prayers are with you, and your whole family. Kat Heckenbachhttps://www.blogger.com/profile/17690721679155795038noreply@blogger.comtag:blogger.com,1999:blog-1095252879492157665.post-13884594166317570292014-11-15T13:14:19.702-05:002014-11-15T13:14:19.702-05:00Gosh, that's really scary! At least you'll...Gosh, that's really scary! At least you'll know what's been plaguing you, and can take steps to manage it. Kessiehttps://www.blogger.com/profile/15019626781634777336noreply@blogger.comtag:blogger.com,1999:blog-1095252879492157665.post-80506473034915137412014-11-14T22:18:35.349-05:002014-11-14T22:18:35.349-05:00I pray your son will find the right solutions for ...I pray your son will find the right solutions for his challenges attached to AS. As for me, I have a referral for x rays and will get the blood test for the genetic marker to start, and we'll see where it goes from there. Being female, I at least have a statically lesser chance of my symptoms being severe, so that's something to hope for, if I do come up as having it.<br /><br />It all gives new definition to "one day at a time."RebeccaPMinorhttps://www.blogger.com/profile/06433599770860270767noreply@blogger.comtag:blogger.com,1999:blog-1095252879492157665.post-24444367491526774132014-11-14T20:06:47.297-05:002014-11-14T20:06:47.297-05:00Wow, oh, I, wow. I have a son with ankylosing spon...Wow, oh, I, wow. I have a son with ankylosing spondylitis. I knew my state representative also had AS, the reason he resigned, so I contacted him, and he graciously wrote a long letter to my son. He fought the disease aggressively, walking three to four hours a day (not in one stretch, it was walk, rest, walk, rest) which I have trouble even imagining. He and his wife went to a hot mud spa in Italy, and when they came back they were both really sick with a parasite. He was treated for the parasite, and his AS went away. So he got a job at FEMA. Huh. I was half ready to send my son to that spa. I've been researching helminthic therapy, which my son wants nothing to do with. And who can blame him? Still, you feel so desperate to do Something when you see your child in pain. He doesn't know if it's the AS or the medication he takes for AS that has slowed his brain to a crawl, so he can no longer do the programming jobs he loves. So. Sad. I don't want to tell you what to do other than this: when you read about a syndrome, know you are reading about every possible symptom. Nobody has 100% of the symptoms. Not everybody has the same outcome. You picked a distressing time to gain a distressing syndrome. May God ease these gray days for you.Lelia Rose Foremanhttp://www.leliaroseforeman.blogspot.comnoreply@blogger.com